Now add Christchurch

Autistic, Aspergers, ADHD needs etc;

No one can imagine the circumstances of rearing special needs children unless doing so. The slightest change can set them off and the focus is normally on the children not the parents well-being.

These parents are the silent hero’s in this situation bearing the brunt of constant chatter until there is almost no room left for a single thought, sleepless nights, a house that looks like a tornado just went through it daily and so much more.

Imagine living under the strain of constant demands in every aspect of ones life knowing it’s not going to go away and at the end of the day it’s all up to you. Yes very exhausting.

Functioning as a normal adult becomes difficult to do when exhaustion sets in and it’s too bad because one simply must find that extra reserve of energy. Respite whats that? Time to do adults things that don’t  get done when you’re the caregiver – such as trips to the dentist. There is not a lot of fun happening; simply care giving, cleaning, schooling in many cases, driving all over the city to appointments and filling out endless forms for the various agencies and so forth just to name a few.

There is all to often not enough support and while society expects these parents to be as well and do as well as most they do so much more than most without as much rest as most – it’s unrealistic.

Certainly the life these parents knew before special needs came along, the things they use to have and do have gone out the door. This group lives a war zone style of existence which can seem unrelenting and they are often forgotten in so many ways just as the condition/s are not easily understood or accepted by main stream society in everyday life. There is no wheel chair, walking stick, guide dog, and so on.

Now add Christchurch.

To the special needs families and children, you have been on my mind and in my heart. I am ringing around to check on what is being done for you so I will do what I can from here. In the mean time this is not a time to go it alone so if you need extra help speak up, tell people and tell them what you need beyond what is already being done. I know the health services are on site and you are all helping each other but I am also fully aware of just how overwhelming taking care of these special kids is 24/7.

This whole situation is beyond the limits of overwhelming and yet the people of Christchurch and their helpers are all so inspiring, so very brave and so very much making us proud.   That we get to see what it means to be a kiwi when it comes at such a high price is so very sad. So many hero’s seen by the world, so many unseen. So Mum’s and Dad’s of these special kids this is your moment to be recognised for the hero’s you have always been and to say to you there are people here who know it.

I have spoken to Variety this morning and its good news as my contact had just come out of a meeting dealing with the very issues I had pondered over the last few days  – so things are under way. I wont stop and have made other calls.

Having an Aspergers, ADHD  child I had thought; what would I (hope) do in earthquake circumstances due to his needs? It’s just a thought but I hope the following helps.

Firstly I would go straight back to basics. I would slow my words right down, Use few and simple instructions, apply hand signals for visual effect, and here is hoping stay calm on the outside.

Once I knew we were safe, using part of the condition I know always gives me the space to process and my son the space to go to where he feels safe when stressed, I would create what he calls “a safe space” for him. This is often a small, quite, darkened not dark space, to go into. I know that seems strange given Earthquake but to these kids its simply security. Yes I would find what ever I could to create this space. The next best thing is being snuggled in a blanket which by now you will we assume all have.

Another thing these children like to do when insecure is play animal such as acting like cats and dogs. I would use anything I could find to make him a tail or ears, even a fur like body (Blanket). Once I knew my son was inside the space happily making his cat sounds, or dog sounds, and playing like this I know (A) he is diverted, (B) where he is and likely to stay. All this giving me time to get my bearings and think about what to do next.

So while all this is just a thought I also thought it might help. Here is the link  ADD ADHD ASD in New Zealand

http://www.facebook.com/?tid=10150105951239539&sk=messages#!/group.php?gid=71132280095

If you are able to use your computer the group members there will I am sure lend a listening ear and even be able to give suggestions that your tired minds may simply have skipped over due to being over whelmed and over loaded.

God Bless you all

Te Manawa

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About TeManawa te ao

Build on truth for lasting foundations Introduction I am Debra Ann Potroz, my hapu is Ngaati Mahuta. Born Under the watchful eyes of Mount Taranaki in Aotearoa Land of the long white cloud(NZ) I am descended from a long line of Kings. I was raised by my Tupuna, great ancestors of the past. On July 4th 2007 I was informed by an elder of the council of elders I received and in response accepted succession to the Maori Throne (confirmed Oct 2011). Later in the year this same Kaumatua informed me Mother of the Nations had been conferred adding the elders had called me TeManawa (The Heart) by which I was to be known. Previously an elder of Maniapoto had bestowed the name Hawaiikirangi. There is also official and validated Authority as The word made manifest, Christos, anointed one, since 1999, which has also been documented and recorded since 1992 to current. Barry Brailsford one of our great New Zealand authors released prophesy of the one to come who would hold up a stone at the temple of the 4 winds, he wrote she is the Leader of the Children of Light. In a glass case it waited 5 years for the hands that would lift it. In 1999 they arrived. The profile picture is of the stone (Petros Petra) named "Te Tapu Manawa nui" meaning The sacred big Heart (Manawa nui means Heart, brave, patient steadfast) yet it is the intent of nui to express in this case pure, Immaculate. Green stone is the stone of pure creation. It is the stone of peace, of The Gods, the fish, The stone of heaven and The Grail stone. Poutini is its guardian and is the first star of Orion's belt. It is held up at the gate of Tula on earth under the stars of Orion's belt, by Te Manawa (The heart) the person and first(An) in the sacred marriage as Poutini and Te Tapu Manawa nui in her hands join heaven to earth and earth to heaven. TeManawa as The word (Christos, anointed one) makes declaration standing in the circle of creation - Te means tree thus the true cross of Christ or the logos/word. Those with true hearts being the fertile soil shall find them. Debra also received "the foundation stone" in Maui 1996. Barry is of the Waitaha people, Te Manawa is Maori her (tribe) Iwi is Waikato whose waka is both on earth and in heaven being te waka o Tainui o te Ra. The waka bow is the Pleiades, Aldebaran is in the sail also known as The Golden Arrow and Orion's belt is the stern. TeManawa is The Heart of Heaven and the Heart of Earth. Kuia Taini Drummond explained the people are the heart beat. And thus TeManawa is announced to the world. All material is copyright Soul Directions 1992. Permission must be obtained to reproduce or use. Where permission is given no alteration to the material may be done. Bragging rights TeManawa has two sons, Tristan Pascoe and Samuel Potroz (Hill). Samuel is anointed and was held up to the four winds by Kaumatua Pereme Porter shortly after Samuel's birth in ancient ceremony.
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